I've been really slack in posting these. I really have. I've been so busy/stressed/depressed to do anything regularly. And I even have my phone set to go off every Friday evening! Slacker me :) Well, since it's been a while I'll explain all about Send it to God Saturday. Each week (or as often as I can) I'll post my prayer request for the week, and I ask that you post your prayer requests in the comments and I'll pray for you as I read through them, and I'll come back several times in the week to pray as well.
This week, I don't even know where to start. I have a lot of prayer requests. The first one is for me. I've been struggling with some things emotionally lately, but mostly I think a lot of it is just stress and my meds need adjusted. I've been having issues getting in with a psychiatrist due to insurance issues and such, so please pray that I can get in soon and get the meds that I need.
The next prayer is for Eric. Man, I can't even believe I'm typing this. As most of you know, Eric was diagnosed via biopsy with Non-alcoholic Steatohepatitis 4 summers ago, when our sweet baby Dylan was a baby. (he was sweet then, now, notsomuch) At the time he was at stage 1 fibrosis, and we were told that it may not ever get worse, and even if it did, it would be 10 or 15 years before it got to that.
Insert maniacal laugh here.
This past October (I think) he had a second biopsy to check the progression of the disease. Usually biopsies are only done every 5-7 years, so having one just over 3 years later was a bit odd, but I didn't worry too much. I don't think I even remember getting the report on that. I know we did, but I don't think it sank in. That, or Eric got it and didn't tell me everything. Either or. Well this past week he had to have a sleep study, and we just got the report his liver doctor sent to the sleep study place. Oh. My. Goodness.
The first paragraph states that he has biopsy-proven steatosis with steatohepatitis and bridging fibrosis. He has had severe NASH with progressive fibrosis on biopsy since his initial biopsy in 2006.
The first word I saw was "severe". Sigh. And then I looked up "bridging fibrosis", bc I wasn't sure what that meant. I couldn't find much, other than an explanation that read : Fibrosis is scar tissue that forms as a result of persistent inflammation in the liver. If you cut your skin, you form scar tissue which is good. However, if you inflame the liver, you can develop scar tissue or fibrosis which can be bad. If the fibrosis advances, it can start to destroy the liver. Typically fibrosis starts around the portal tract and the mildest form of fibrosis is periportal. As the fibrosis extends, it typically extends kind of like spokes from the center of a wheel. The spokes are called fibrous septae. When the fibrous spokes from one wheel meet with the fibrous spokes form another wheel, they form a bridge and we call that bridging fibrosis. This is often called stage 3 by the Knodell classification of grading liver biopsies. If the fibrosis advances beyond this, we call it cirrhosis or stage 4.
Fun. The other thing I read said something that made me want to strangle someone. It said that patients with bridging fibrosis on biopsy are much closer to end-stage liver disease than those with minimal or no fibrosis. Oh yay. :)
And to confirm, the next paragraph said that he had progressed from stage 1 to stage 3 fibrosis in 3 years. So we know for sure he is classified as stage 3. The next stage, as stated above, is cirrhosis. Sigh. I ask that you all pray hard for us, as this is progressing much more quickly than anyone ever imagined. Pray for healing, for relief from the pain, for wisdom. Thank you all so much for your support. I don't really know what else to say or what else to ask for, but thank you all for praying.
I'm a wife. I'm a mom. I'm a photographer. I'm a lover of Jesus. My house is a mess, my kids are dirty, we eat take out more often than not. My life is loud, busy and crazy. And that's okay with me.
This is Eric, the man you've been praying for. He's a paramedic. He quilts in his spare time. No, I couldn't make that up :) He has NASH (a form of liver disease, non-alcoholic) and diabetes, but those things don't define him. He's a man of God, an insanely wonderful husband, and the best daddy in the world.. Just ask these guys..
Our daughter Ali, she's 9. She's fiercely opinionated and strong willed. She's a Daddy's girl, but the umbilical cord hasn't but cut from me, either. She's a gymnast, and proud of it. She spends more time upside down or turning flips than she does walking. She's crazy smart, and absolutely sure of it. She is my insufferable little know it all.
Our son Dylan, 7. We lovingly refer to him as Chubs. Or Chubby. Or fat boy. Ahem. He is all boy, as you can see by his crazy wild energy. He has the highest pain tolerance of any child I have ever met. He plays soccer and does gymnastics, but truly he is a gamer, a nerd. He is an avid reader and loves to climb. Not to be outdone by his sister, he's a drama king, but to him, I'm the best mommy in the world.
I'm here to use my voice. So many people can't. In a world of darkness, I just want to help God's light to shine through. I pray that my words are His, and my love is His, as well. This is my journey through the darkness. To start are the beginning of the story, click here.